Evan Craig is a musician/charity organizer/actor/model from Halifax and Alberta. Credit: SUBMITTED

My first memories are a mix of Cystic Fibrosis and He-Man. Of hearing somewhere that the disease would kill me by 31 (the national average age), and having bullies use it against me. I lived my life with that.

Music gave me great comfort when I was just six years old and onward. Jackson 5, Elvis, Pearl Jam, Zeppelin; they would give me an escape while never hurting me.

Spending weeks or months in a hospital, alone and for the most part confused, armed with my albums as more of a shield than any ammunition. My Walkman served as a GPS to my life—the soundtrack if you will. Singing that music when I was hit on my bicycle by a truck at full speed.

Flash to days later, out of danger but with a broken femur that already needed surgery and a broken collar bone. As I got better I learned guitar and have never looked back. My father told me while I healed to write my own stuff, create my own sound, be a true artist. I had no shortage of heartbreak to use as material for songs. Since that time, I’ve been in two bands that have spanned 15 years. I left the band here in Halifax about five years ago and by chance landed in Edmonton after first moving to Surrey.

Up until a few years ago, after numerous infections in my lungs, my life seemed over. Hooked up to oxygen 24/7 and wasting away to 123 pounds (my height is 6’4”), I ended up admitted to hospital in early January 2014 with severe trouble breathing, a burning in my chest—very, very weak. I alerted the nurse of this pain only to have her look at me like a drug addict. I was told “to try a hot shower and see how it goes from there.” Never one to argue, I did as she told, bringing my heavy body and squeaky oxygen tank along with. Last thing I remember was trying to take my t-shirt off. I passed out—collapsed lung.

I needed an immediate lung transplant. Edmonton was one of only three cities in Canada that offered the surgery. My parents were given a choice to either have me for a week or two, fully conscious but drugged out, or agree to have me put in a coma and give me a month to find lungs.

Almost a month later, the doctor told my father I had less than 24 hours left. People from far and wide said their final goodbyes. Eight hours later they found lungs. One hour to be airlifted and another eight in surgery, with another major surgery a week later that was just as important in living.

Waking and feeling paralyzed (muscle atrophy) and once again I had to learn how to walk, talk, eat. But most importantly; play and sing music again. That was my driving force when I would cry to let the torture end. I still had music (in the form of a docking station). Music has and always will be my shield. It’s the shield that still keeps me alive.

Some days are easier than others. Some days you may not even attempt at trying, but it’s in this space you find your peace; your default setting; your presence of mind, drowning out the static that floats through all of our lives these days.

Pain is relative and the only thing we are guaranteed in life is death. Art is still out there for people who are seeking it. But most importantly find whatever it is that makes all other thoughts disappear—cooking, reading, working out, painting, anything that helps you and doesn’t hurt anyone else.

Any musicians or writers please contact me if interested in a co-author credit or studio work.

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8 Comments

  1. I just want to reach out and hug you. I never knew you had such hardships in life and at such a young age. You have always been an incredible musician and I’m so happy to hear that it’s your passion for creating and performing music that has pulled you through some dark times. Don’t stop creating!

  2. Strength, determination and a desire to hold on. What an inspiring and breathtaking journey you have been living.

    I look forward to seeing more from you and wish your journey to be healthy and passionate.

  3. I have always wondered where life led you Evan after teaching you in grade 5. I’m so sorry that you have had to endure so much, but am not surprised that you have dealt with everything “head on” in your positive way. I always remember your great smile and attitude in grade 5. Thinking about you!
    Cathy Townsend

  4. Thank you for sharing this….I have a daughter with cf who is in elementary school and so want her to stay positive through the hardships in life especially when she looks up at me in tears and wonders why she has to take 10 pills for her to be able to eat and no one else does and asks why me, mommy, why me? So heartbreaking but I tell her we all have our own battles in life and hers is cf and we have to find ways around it. I was diagnosed with cancer 5 years ago so I know all too well how precious time is and I try to Instill in her To make the best out of life and not to take one single day for granted. Hope you have a lifetime of happiness and health 🙂

  5. Thank you love and light. I know that feeling all to well. A positive thing I could think to say is that how good it is for your daughter to at least keep being honest and talk about things. If she does stop communicating the main thing is not be jaded, don’t get tired from infection to infection. Families get use to hospital stays and communication breakdown. It may be eventually her 20th infection but it’s probably going to feel just as surreal as her first to her. Don’t get use to the repetition and keep communicating. She should be able to live a long healthy life. And I hope everything goes ok with you. That’s a lot to handle. If you ever need to talk to someone you can find me on IG under evanwcraig or here on fb under Evan Craig. All the best to everyone.
    🙂

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